The first time I went to the adult CF clinic with my husband (boyfriend then) the nutritionist told me “the best thing you can do is fill him up with fried foods, high fat foods, lots of butter, fast food…really the best diet for him is Big Macs every day” and so I did. After all, they were the experts.
The next time I went with him to the clinic I asked the nutritionist, “aren’t you worried about heart disease or diabetes or any of the negative effects of eating high fat diets?”
Her response, you ask?
“CFers don’t have those problems. They don’t live long enough to experience the negative effects of that diet. Really, we’re just trying to keep weight on them so they can stay healthy while they’re alive.”
That’s when I realized the research for CF diets is still in the stone ages. Before CFers were living into their 30s, 40s and 50s this diet made sense…sort of. Ask any CFer on this diet how their bowels treat them.
During our six years of marriage, I have acquired and adapted a number of recipes that are both healthier than straight fried fast food everyday and benefit the weight maintenance of my (previously 129lb) now 150lb 36-year-old DDF508, GERD, CFRD husband. I would also like to think I’ve learned a thing or two beyond nutrition and plan to post some stories about our lives together from time to time.
The recipes I post in the CF Recipes category along the right-hand side of my page are not officially endorsed by any medical professional or organization. These are just recipes I have found benefit my guy in maintaining his weight. Some are clearly more fatty than others, but as with all things, in moderation shouldn’t do half the damage the “feed them straight big macs” regimen would do. As for the other stories, well, those are intended to be cathartic, humorous and relateable for others out there living with or feeding someone with Cystic Fibrosis.